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One of the key goals of the Summer Foundation is to enable young people in nursing homes and their families to be informed, make choices and tell their stories. It is essential that we engage people with disabilities and their families and collaborate with them to resolve the issue of young people in nursing homes. How do we do this in practice?
Appreciative inquiry is a process I read about recently which is highly relevant to a community buildng approach to resolving social justice issues. This process, developed by David Cooperrider (Case Western Business School) is based on getting all stake-holders together to ask each other meaningful questions.
It brings together people from all levels of an organisation and pairs up participants, each person interviews his or her partner. Questions are designed to encourage people to open up to each other and, in the process break down any hierarchical differences.
People begin to see each other as individuals. After interviewing each other, participants form circles where they are encouraged to dream and brainstorm. During the brainstorm every idea – regardless of who came up with it – is given credence.
Appreciative inquiry draws upon knowledge from the edge of the network. Because everyone feels they have been heard, participants become more likely to support a new plan. This approach is based on the assumption that the best knowledge is often at the fringe of an organisation e.g. people with a disability, disability support workers and families.
Posted at 03:17 AM in Community building | Permalink | Comments (0) | TrackBack (0)
Following is my summary regarding leadership in a ‘starfish’ organisation from The Starfish and the Spider, (Brafman & Becktstrom 2006). The leaders of ‘starfish’ organisations are described as catalysts rather than CEOs. CEOs create order and structure; catalysts thrive on ambiguity and apparent chaos. A CEOs job is to maximise profit. A catalyst is usually mission-orientated.
The catalyst leader model is ideal for community building or creating a movement. It reflects the staff culture at the Summer Foundation and spurs me on to focus more on building relationships rather than structure and control. We are working through issues like governance, risk management and financial monitoring, which is more challenging in a decentralised organisation than a traditional top-down structure. Most of our work involves partnerships with people with disabilities, families and other organisations – these relationships are based on a shared ideology (i.e. people with a disability have inherent value and belong in the community). Engaging individuals and organisations as genuine partners makes a ‘top-down’ or ‘command and control approach’ impossible and inappropriate. As we listen to others and include their ideas, our projects evolve and mutate into a better version of our initial proposal or solution.
CEO | Catalyst |
The boss | A peer |
Command and control | Trust |
Rational | Emotionally intelligent |
Powerful | Inspirational |
Directive | Collabotative |
In the spotlight | Behind the scenes |
Order | Ambiguity |
Organising | Connecting |
Brafman, O. & Becktstrom, R, (2006) The starfish and the spider: The unstoppable power of leaderless organisations
Posted at 03:38 AM in Creating a movement | Permalink | Comments (0) | TrackBack (0)
I have just finished reading a book called “The starfish and the spider:
The unstoppable power of leaderless organisations” which is about the power of
starfish organisations to turn industries and society upside down. In response
to overcentralised industries or institutions, people rebel and create open
starfish systems. The starfish model presented has a lot of relevance to a
community building approach and creating movements to resolve social justice
issues (e.g. young people in nursing homes).
This book uses a spider analogy to describe traditional top-down
organisations where the leaders want to control what’s happening, thereby
limiting creativity. In this model
board and CEOs use command and control to keep order in the organisation. Each
decision has to be analysed and approved by the executives and there are clear
structures, rules and heirarchies. Like a spider in a centralised, top-down
organisation, if you attack the head (or the leadership) the spider dies.
Starfish organisations are decentralised and based on a network with a
flattened heirarchy. Starfish have no central nervous system and no brain to
control things. You can chop one in half and get two new ones. In fact, each
radial segment, if complete, could grow a new starfish if separated from the
rest of it.
In startfish organisations there is no clear leader or heirarchy, and no headquarters. If and when a leader emerges, that
person has little power over others. The leader leads by example.
Starfish organisations are open systems easily mutate, they are able to
react, mutate at a quick pace and grow quickly. Decentralised organisation are
very amorphus and fluid, Because power and knowledge are distributed,
individual units quickly respond to a multitude of internal and external forces.
Conventional thinking is that to run an organisation you’d better be highly
organised and structured. Starfish systems are wonderful incubators for
creative, innovative or creative ideas. Good ideas will attract more people,
and in a circle, they’ll execute the plan. Institute order and rigid structure, and while you achieve
standardisation, you’ll squelch creativity. Where creativity is valuable,
learning to accept chaos is a must.
Ideology is the glue that holds decentralised organisations together.
Because a decentralised organisation can’t draw upon command and control to
motivate participants, it needs a strong and ongoing ideology to keep them
going.
Circles are important to nearly every decentralised organisation. Once you
join a circle, you are an equal.
It’s then up to you to contribute to the best of your ability. Whes circles take on more than 14
people, the bond tends to break down.
The starfish organisations organisation provides a language to describe the
work of the Summer Foundation. This
model describes what we are already doing and strengthens our resolve to work
with people with disabilities, families, workers and partner organisations to
create a movement to resolve the issue of young people in nursing homes. We are
busy tapping into and stregthening existing networks and circles and creating
new circles and networks of people who have knowledge and a fundamental desire
to share and contribute. Working with other stakeholders is critical to our
mission so we are active participants in the Victorian Young People in Nursing
Homes consortium, the my future my choice
advisory committee and the Victorian Coalition of Acquired Brain Injury
Service Providers. Circles we have
started include the Summer Foundation Property Advisory Panel, the Network of
new accommodation service providers and a series of workshops for people with a
disability who want to explore getting involved in systemic advocacy. We are also exploring ways of
developing peer support networks for people with disabilities living in nursing
homes and carer support networks for families of young people in nursing homes.
Brafman, O. & Becktstrom, R, (2006) The starfish and the spider: The unstoppable power of leaderless organisations
Posted at 03:19 AM in Creating a movement | Permalink | Comments (0) | TrackBack (0)
Last week a report was released by parliament which makes recommendations for making public buildings more accessible. This report of the parliamentary inquiry into the draft
Disability (Access to Premises - Buildings) Standards makes a number of
recommendations which would help the standards better achieve their object and
purpose. The draft Premises Standards are intended to make public buildings
more accessible for people with mobility, vision and hearing impairments. If
introduced, the Premises Standards will have a widespread impact, improving
building accessibility for new buildings and existing buildings undergoing significant
upgrades. In addition to providing better access to buildings, the Premises
Standards are also intended to provide certainty to building certifiers,
developers and managers that they are complying with their obligations under
the Commonwealth Disability Discrimination Act. The Premises Standards clarify the responsibilities of the
property and building industry under the Disability Discrimination Act and
provide technical details for the design and construction of buildings so that
they are accessible to people with a disability. Following extensive consultation, during which over 130
submissions were received, the recommendations made by the Parliamentary
inquiry for improvement of the draft, include: Adoption of the Premises Standards would be accompanied by
changes to the Building Code of Australia to ensure consistency.
Posted at 01:06 AM in Universal design | Permalink | Comments (1) | TrackBack (0)
Earlier this week I was at the Communities in Control
conference http://www.ourcommunity.com.au/control/control_main.jsp,
which was very practical and inspiring.
Alison McCleland (Department of Planning and Community Development) spoke
on ‘How to persuade government with hard and soft data’ which provided some
clear practical advice on influencing government policy.
Alison referred to useful a journal article by Brian Head (2008) entitled The three lenses of evidence-based policy. Following is an outline of the practical tips contained in the article by Brian Head.
Policy decisions emerge from politics, judgement and debate, rather than being deduced from empirical analysis. Policy debate and analysis involves an interplay between facts, norms and desired actions, in which ‘evidence’ is diverse and contestable. There are three types of evidence or three perspectives that are especially relevant in the modern era:
These different bodies of knowledge provide a range of evidence to inform and influence policy rather than determine it.
This is the know-how, analysis and judgement of political actors. This involves:
Policy seen through the political lens, is about persuasion and support rather than about objective veracity.
This is the product of systematic analysis of current and past conditions and trends, and analysis of the causal inter-relationships that explain conditions and trends. In relation to policy review and assessment, there is a range of disciplinary and cross-disciplinary knowledge. Inter-disciplinary approaches have some to the fore in recent decades for addressing multi-layered social problems. Researchers are sometimes naïve about what policy analysis will be seen as relevant and about how to communicate and package their research outcomes effectively to inform government policy.
This knowledge focuses on program effectiveness and the ‘practical wisdom’ of professionals in their ‘communities of practice’ and the organisational knowledge associated with managing program implementation. These managers and professionals wrestle with everyday problems of program implementation and client service.
For governments, problems and issues become seen as worthy of investigation owing to a confluence of circumstances such as:
- A perception of crisis or urgency
- The role of political mandates and priorities
- The role of expert judgement and advice (consultants, inquiries etc.)
- Organisational and issue histories
- The changing context of social values and public opinion
The issue of young people in nursing homes is currently on the national government agenda. However there is a risk that once the current five-year $244 million initiative finishes in July 2011, that 700 Australians under 50 will continue to be admitted to aged care each year.
What evidence do we need to take to government? (Alison McClelland, 2009)
1. Highlight
issues and focus policy debates
2. Describe
the impacts of existing policies
3. Consider
new policies and programs through evidence from our service experience about
what works
No one organisation is able to do all of the work or provide the range of information required to effectively influence policy, practice and funding related to the issue of young people in nursing homes. In order to resolve the issue of young people in nursing homes we need to develop a ‘policy network’ or ‘policy community’ that includes participants that are able to provide knowledge from all three of the ‘lenses’ outlines above.
The Young People in Nursing Homes Alliance has been effective in raising public awareness, developing relationships with state and federal politicians and getting the issue on the government agenda. The Summer Foundation is undertaking a range of studies to provide an evidence based to influence policy, practice and funding. Through the Building Better Lives initiative (buildingbetterlives.org.au), the Summer Foundation is also engaging a community of practice to provide government with the practical knowledge and experience of what works for this group of people.
One critical area that was not identified in the three lenses outlined by Head (2008) was a community building approach to influencing government policy that empowers the target group involved. A grassroots approach to resolving social justice issues was a recurring theme throughout the Communities in Control conference. In order to resolve the issue of young people in nursing homes we need to work with people with disabilities and their families as empowered partners. We need to start by finding out what young people in nursing homes and their families care about. Once we know what they want to work on, we need to give people with disabilities and their families agency and control over their destiny. We need to work with them, get them to select a problem they want to fix and resource them to resolve it.
Head, B. (2008). The three lenses of evidence-based policy. The Australian Journal of Public Administration Vol 67, No.1 pp. 1-11
Posted at 04:23 AM in Influencing Policy | Permalink | Comments (36) | TrackBack (0)
What progress is being made with the $244 million COAG Young People in Residential Aged Care Program?
Number of people out of residential aged care
|
State/Territory |
Achieved as at
December 2008 (Cumulative data) |
|
NSW |
2 |
|
VIC |
19 |
|
QLD |
25 |
|
SA |
17 |
|
WA |
3 |
|
TAS |
1 |
|
NT |
1 |
|
ACT |
2 |
|
TOTAL |
70 |
How does this progress compare to the targets that have been set?
The targets for the COAG Young People in Residential Aged Care Program include:
So the aim of this initiative is to move at least 402 people out of aged care and half way through the initiative 70 people have moved. Clearly the last half of the initiative needs to focus on getting all the planned new supported accommodation services built and running.
How much of the $244 million has been spent?
For the first year, 2006-07, funding was $4,190,136. That was the Commonwealth’s contribution and would have been matched by states and territories. For 2007-08, the amount was $14,179,231, and that also would have been matched. Then we are into the current financial year $28,287,400 (February 2009). So, in February 2009, $93,313,534 was spent including the contribution from both the state and federal governments (Senate Budget Estimates, 26 February 2009).
What evaluation is taking place?
FaHCSIA have contracted Urbis to conduct a mid-term evaluation. Given that mid-term was December 2008, this report is overdue.
Given that there appears to be limited independent research to evaluate this significant investment of public funds, I have initiated two studies to examine the outcomes of this initiative and inform policy and future expenditure. These studies are part of my PhD at Monash University.
Evaluation of National Young People in Residential Aged Care program: We are currently conducting an independent study to evaluate the progress of the current national Young People in Residential Aged Care program. This study involves interviewing a range of stakeholders in each state about the progress of the initiative. This report will be available in September 2009.
Transition outcome research:This study obtains a baseline measure of health and well being for young people living in aged care and then examines the health and well-being of this group two years later when some have move to alternative accommodation and support options and others remain in aged care. Given the slow progress of people moving out of aged care this study will not be completed for another two years.
Posted at 02:44 PM | Permalink | Comments (0) | TrackBack (0)
On 24 April, the Victorian Government announced its commitment to regulate for accessible housing. In the next few months the Government will invite public consultation on a draft Regulatory Impact Statement investigating the costs and benefits of mandating the following four accessibility features in Victoria’s building regulations:
It’s proposed that these features will apply to all new houses, all new ground floor units in medium density dwellings and 1 in 5 units in high density developments.
These features will make these dwellings ‘visitable” by people with mobility impairments rather than ‘habitable’. While the Government hasn’t committed to the full universal design standard the Victorian Universal Housing Alliance has been advocating for, or to universal application of the standard, this is substantial progress towards universal design.
Posted at 01:54 PM in Universal design | Permalink | Comments (0) | TrackBack (0)
The social housing being develop as part of the national stimulus package provides a tremendous opportunity to dramatically increase the amount of housing for people with a disability. There will be little scope for accessible design in phase one of this social housing initiative, because it will focus on the completion of developments that already have planning approval. However the federal government has a set a target stipulating that 20% of new dwellings built in phase two be accessible - Australian Standard for Adaptiable Housing AS4299-1995, Class C. Nation Building - Social Housing Initiative Guidelines
The Summer Foundation is collaborating with the state and federal governments, housing associations, property developers and community service organisations to foster the next generation of housing for people with disabilities that is integrated into larger mainstream or affordable housing developments. These integrated models will enable people with a disability to live in dwellings that are close to friends, family, public transport, services and their community and therefore will facilitate community participation. This is an important step towards the social inclusion of people with disabilities. This initiative will increase the number and range of housing options available for people with a disability.
Posted at 04:39 AM in Social housing | Permalink | Comments (0) | TrackBack (0)